Join us in building a vibrant community that inspires change!

INSPIRE’s new Community Engagement Learning Network is a unique opportunity for community engagement (CE) professionals and people with lived experience (PWLE) to connect and learn together. Based on feedback from hundreds of people across the country about what they need to advance their work in CE, INSPIRE’s CE Learning Network is a community dedicated to sharing best practices, providing support to one another, and enhancing the field.

2025 scheduled sessions will all take place on the fourth Wednesday of each month, beginning at 3 pm ET.

REGISTER Here: Meeting Registration - Zoom

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

Join us for a live webinar.

If you are a person with a disability in California or their circle of support, we want you to know about these upcoming changes to Medicaid. Experts from Disability Rights California are going to break down who will be affected by these changes, when they are going to take place, and which law is causing each change.

This event is part 1 of a 3-part series on Medicaid changes. Parts 2 and Part 3 will dive into specific changes that will impact people with mental health disabilities and people with intellectual and developmental disabilities (IDD).

When:
Wednesday, October 15, 2025
5:30 PM - 6:45 PM
Pacific Time

Register Here: https://www.disabilityrightsca.org/events/medicaid-changes-part-1-state-and-federal-policy-updates-for-californians-with#register

Share Your Feedback on NQF’s Draft Report on AI in Healthcare Quality Measurement. 

As a reminder, the National Quality Forum (NQF) is seeking comments from the public on a draft of its upcoming report on the use of artificial intelligence (AI) methods in healthcare quality measurement through October 15, 2025. 

We Need Your Input

We invite you to submit comments on the draft report, which includes guidance and recommendations for developing, selecting, and implementing AI-enabled quality measures in accountability programs, including value-based payment, public reporting, performance-based provider network designs, and accreditation. Public comments submitted as part of this important initiative will inform the final report.

To learn more about the initiative, visit NQF’s website. To read the draft report and submit comments, go to surveymonkey.com/r/FD867LY. Please submit your comments by October 15, 2025, at 6:00 PM ET.

About This Initiative 

AI methods, such as natural language processing, machine learning, and large language models, hold enormous potential to enhance healthcare quality measurement. To realize the full potential of AI for quality measurement, we must establish strong governance and industry consensus. 

To drive consensus on the guidance and recommendations, NQF convened a national technical expert panel (TEP) comprised of stakeholders from across the healthcare ecosystem, including experts in the use of AI methods for healthcare quality measurement, clinical informatics, health information technology, and health equity, as well as representatives from payers, and health systems familiar with the use of AI methods for quality measurement. The TEP outlined key strategies to advance trustworthy AI-enabled measures and created a multi-step roadmap for implementing the strategies. This initiative on the use of AI in quality measures was funded by the Gordon and Betty Moore Foundation. 

If you have any questions, please contact the NQF AI in Quality Measurement team at AIinqualitymeasures@qualityforum.org.  

Share your feedback: https://www.surveymonkey.com/r/FD867LY

Thank you in advance for your participation and for your commitment to advancing healthcare quality.

Prescription drug pricing reform is at a pivotal point. The Center is hosting the Fall Policy Summit at the USC Capital Campus in Washington, DC. The Summit will bring together leaders in healthcare policy, patient advocacy, research, and industry to examine the promises of and pitfalls of international reference pricing (IRP) and to identify patient-informed, sustainable alternatives.

Grounded in our commitment to transparency, equity, and patient-centered value, this event offers an opportunity to shape policies that balance affordability, access, and innovation. Attendees will gain insights from global experts, hear directly from patients, and contribute to a policy roadmap for reform. [Tuesday, October 7, 2025 | 9:30 AM - 3:30 PM ET ]

|| LEARN MORE ||

REGISTER for Livestream.

CalABLE is a savings and investment program for people with disabilities. It helps individuals save money without losing important public benefits like SSI or Medi-Cal. This session is designed to help individuals with disabilities and their families understand how to save and invest money without losing essential public benefits. In this webinar, we will be discussing: • CalABLE basics and eligibility • Medi-Cal basics and eligibility • How CalABLE interacts with Medi-Cal • Medi-Cal estate recovery • FAQs The webinar will conclude with a Q&A session to give participants an opportunity to ask additional questions. If you are new to CalABLE and would like to explore the basics of the program, please visit our YouTube channel for replays of some of our earlier webinars that discuss the fundamentals of CalABLE. We will have ASL, Spanish, and live captioning available for this session.

REGISTER Here.

In this Town Hall, we will hear from 3 panelists representing communities in the healthcare ecosystem that we hear from less about the ways in which the conditions of industrial healthcare - the culture, policies, processes, and spaces - are impacting the ability of patients, caregivers, clinicians, and staff to trust and what we can do about it.

For full speaker bios and recommended media to view before the event go to > https://www.patientrevolution.org/library/trusttownhall Panelists: Carolyn Canfield, patient advocate, educator, and TPR Fellow Erin O'Malley, Executive Director of The Coalition for Trust in Health and Science Gary Schwitzer, a healthcare journalist, educator, and founder of HealthNewsReviews Substack

On September 30, 2025, 10:30a-12:00p ET on Zoom; we will be hosting a Town Hall that considers how decisions made far away from clinics and hospitals impact trust. Register now.

Event Details

Stress has real economic consequences, impacting individuals, families, and healthcare systems, yet it remains unmeasured, mainly in research and decision-making. This virtual, interactive workshop will explore the financial toll of stress that patients and caregivers face when navigating complex and chronic health conditions. Join us to learn how future studies can better capture these impacts and help inform more equitable healthcare solutions.

Key Discussion Topics:

• Personal and economic impacts of stress

• Current research findings and methods

• How to better identify, measure, and address these costs in research

Why Attend:

• Learn from experts and advocates

• Build connections across research, advocacy, and policy sectors

• Contribute to actionable solutions to economic challenges from stress

Join the Center for Innovation & Value Research for the fifth installment in our six-part workshop series within the Center's Patient-Centered Economic Impacts Project. The workshop is open to those interested in making healthcare research more patient-centered, particularly researchers interested in the economic impacts of disease, patients and caregivers eager to participate in or inform research, and funders of healthcare research.

REGISTER HERE.

Registration closes at 3PM ET Wednesday, September 24th.

Please contact Ushma Patel if you have any questions.

Join us in building a vibrant community that inspires change!

INSPIRE’s new Community Engagement Learning Network is a unique opportunity for community engagement (CE) professionals and people with lived experience (PWLE) to connect and learn together. Based on feedback from hundreds of people across the country about what they need to advance their work in CE, INSPIRE’s CE Learning Network is a community dedicated to sharing best practices, providing support to one another, and enhancing the field.

2025 scheduled sessions will all take place on the fourth Wednesday of each month, beginning at 3 pm ET.

REGISTER Here: Meeting Registration - Zoom

Come join us for a fun and engaging Co-Design Event around AI and technology!

💡 AI is changing healthcare — what about the patient and caregiver voice?

AI (artificial intelligence) is showing up everywhere in health care, from apps and portals to chatbots and lab results. We want the patient and caregiver voice at the forefront of this changing landscape.    

On September 17 from 10-11am PT, we’re hosting a special AI co-design event to create the change we want to see together. During this event, we will:   

• Build on what we learned from YOU – in interviews and our AI Survey.     

• Share our own experiences using AI and health technology.

• Talk about the challenges in the system that AI might solve.

• Imagine how AI could make care easier, safer, and more patient-centered.

💡 Your stories and ideas are powerful and needed. This is an opportunity to make sure AI in healthcare is built with us, not around us.  

We can’t wait to learn from each other and dream big together.

Register here: Meeting Registration - Zoom

PFPS US is honored to convene the Patient Safety Federal Leadership Briefing in recognition of World Patient Safety Day, September 17, 2025. This important virtual event will be held via Zoom from 9:00 to 11:30 AM Eastern Time, and registration is required. Please register HERE.

We are pleased to announce that Dr. Mehmet Oz, Administrator of the Centers for Medicare and Medicaid Services (CMS), will deliver a leadership message via video.

Joining PFPS US as Convening Partners for this briefing are the Institute for Healthcare Improvement (IHI), Johns Hopkins Medicine Armstrong Institute for Quality and Patient Safety, and the Leapfrog Group.

Other distinguished presenters include:

• Ruth Ann Dorrill, MPA, Assistant Inspector General, U.S. Department of Health and Human Services

• Michelle Schreiber, MD, Deputy Director, Center for Clinical Standards and Quality, and Director, Quality Measurement and Value-based Incentives Group, CMS

• Jade Perdue-Puli, MPA, Senior Advisor, Agency for Healthcare Research and Quality, Center for Quality Improvement

• Laura Adams, RN, Senior Advisor, National Academy of Medicine

Additionally, Patricia A. McGaffigan, RN, MS, CPPS, President of the Certification Board for Professionals in Patient Safety and Senior Advisor for Patient and Workforce Safety at IHI, will lead a session focused on advancing patient safety for children. The theme for World Patient Safety Day 2025 is Safe care for every newborn and every child.

We look forward to your participation in this vital briefing to advance patient safety nationwide.

Register Here: Meeting Registration - Zoom

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

APHA is looking for people to join our Disability justice advisory board! We are looking for a diverse group of people with many different lived experiences who will guide APHA activities on our Disability justice projects. We hope that many of these people will have lived experiences with Disability as either Disabled people or their loved ones or caregivers.

Timeline (October 2025 –June 2026)
-Complete the interest survey by September 15th at 11:59pm ET
-The first advisory board meeting will be in October
-The advisory board term will end in June of 2026

APHA is looking for people who can actively contribute their time and ideas to our activities, we think that this will take about 3-5 hours a month on average over the next 8 months.

Compensation: Advisory board members will be paid $150 per meeting they participate in for up to $600, members will be paid after each meeting. Receiving this payment will require a w9 for the purposes of taxes. APHA is not currently able to donate any payments.

Apply here: APHA Disability Justice as a Health Equity Imperative Advisory Board Survey

Join IPFCC for our next Informal Conversation, Better Together: Supporting Family Presence and Participation to Improve Safety and Quality: Part II. We know that family presence has a positive impact on care quality, experience, and safety. An expert team from the Ontario Caregiver Organization’s Essential Care Partner Support Hub, Lisa Raffoul, Implementation Lead, Alison Kilbourn, Manager, Melissa Ngo, Implementation Lead, Alia Pota, Implementation Lead, Janine Noorloos, Implementation Lead, Sarah Tariq, Implementation Lead, and Fardowsa Halane, Knowledge Exchange Lead are presenting. They will share their policies, strategies, best practices, and resources for supporting essential care partners to be present and participate in care and decision-making to ensure safety and quality.

Register here.

Pick up key tips you can use right now to feel less overwhelmed and better prepared to be a caregiver. We’ll help you get organized and find useful resources.

About the Event

Everyone’s caregiving path is unique, and preparation can make a significant difference. While the journey may feel unpredictable and overwhelming, support is available. AARP volunteer Leigh Broadway offers practical guidance to help you get organized, explore available resources and know when to use them, and prioritize your own well-being.

About the Series

Tea and Coffee Tuesdays with AARP is a monthly series featuring speakers who share their expertise on healthy aging, livable communities and how to thrive at any age.

How to Join

Sign in to your aarp.org account or create an account to register for events. AARP membership is not required. You will receive an email with the Zoom link before the session. Register here.

Tuesday, Sep 9, 2025

12:00 p.m. ET • 11:00 a.m. CT • 10:00 a.m. MT • 9:00 a.m. PT

Duration: 60 Minutes

Zoom - Free Online Event

For questions, contact AARP CA at caaarp@aarp.org

Disability Rights California Community Conversations: Public Safety for People with Disabilities

Join us for a virtual discussion.

Join us for an important conversation about public safety from a disability justice perspective. DRC invites disabled individuals and their families to come together, share experiences, and envision safer, more inclusive communities for all. For more information click here.

Register here.

This event will center the voices of people with disabilities, highlighting the barriers faced in interactions with law enforcement and exploring non-carceral, community-based alternatives to policing. Through storytelling, community discussions, and collective vision-building, we will explore ways to ensure that disabled people can live, work, and move freely without fear of harm or discrimination. 

Event Goals: 

• Elevate the lived experiences of people with disabilities in conversations about public safety 

• Inform Disability Rights California’s work across investigations, litigation, policy development, and direct services 

• Build community power by centering disabled individuals as leaders and change-makers 

• Raise public awareness of the unique challenges disabled people face when interacting with law enforcement 

Disability and Law Enforcement Survey

Disability Rights California would like to understand the impact of law enforcement on the disability community. The goal of this survey is to gather valuable information that will help guide our initiatives, advocacy, and priorities moving forward. Your voice is crucial in shaping a more inclusive and accessible environment for all people with disabilities.

Your experience matters – Take part in our survey today

Reasonable Accommodations: Deadline to request reasonable accommodations is August 29, 2025. Requests received after this date may not be possible to provide for this event.

Our Facilitators 

Megan Buckles (she/her/hers), Public Policy Attorney

Megan's work focuses on public safety and accessibility issues. She was previously a Staff Attorney with the Civil Rights Practice Group at Disability Rights California (DRC), focusing on the intersectionality of race, poverty, and disability in education, housing, and the criminal legal system. She also previous served as a Senior Policy Analyst for the Disability Justice Initiative at the Center for American Progress (CAP), where she advocated and advanced policy priorities related to the intersectionality of disability justice, racial justice, and economic mobility.

Prior to CAP, Megan was a Clients' Rights Advocate at DRC, where she advised and represented clients on a variety of matters including eligibility for public benefits, regional center services, and special education. 

Paula Sandoval (she/her), Supervising Investigator

Paula joined DRC in 2017 and the Investigations Unit in 2022. She is responsible for conducting complex and sensitive in-field investigations, inspection of facilities, reviewing records, and creating detailed case notes of findings and recommendations.

She has experience working with individuals receiving services from the CA Regional Center system, residents of Skilled Nursing Facilities and connecting community-based organizations to drive systemic change.

Wesley Witherspoon (he/him), Board Member at Disability Rights of California

Wesley Witherspoon was born in Los Angeles. As a native-born Angelino, he navigated the Special Education system. Non-verbal until the age of 4, Wesley have worked his way through school and other activities. Wesley was a star student when he was school. He was good in track and a very nice person.

Wesley won the award in Food class for mainstream class in high school, as a sophomore He received a AA degree from El Camino College and a BS degree from Cal Poly San Luis Obispo. He was a former direct service worker, former family member of a person with a disability as well. He currently works with the USC UCEDD for the last 19 years. He formerly served on the CA State Council of Developmental Disabilities for over 6 years, he served 4 years as the Council Chair of Developmental Disabilities. He was invited to see the White House in 2023 and 2024. Wesley currently serves on the Board of Directors at Disability Rights of California. He is also a member of Los Angeles County Regional Advisory Committee SCDD as of April 2025.

Join us in building a vibrant community that inspires change!

INSPIRE’s new Community Engagement Learning Network is a unique opportunity for community engagement (CE) professionals and people with lived experience (PWLE) to connect and learn together. Based on feedback from hundreds of people across the country about what they need to advance their work in CE, INSPIRE’s CE Learning Network is a community dedicated to sharing best practices, providing support to one another, and enhancing the field.

2025 scheduled sessions will all take place on the fourth Wednesday of each month, beginning at 3 pm ET.

REGISTER Here: Meeting Registration - Zoom

As a person with lived experience, you play many roles: advocate, trusted advisor, peer, patient, employee, caregiver, community builder, and person – navigating life’s ups and downs. There is so much to be done and often, too little time to slow down and ask “what do I need today”. Please join us for this interactive session led by lived experience experts, Kymberly Centaro and Rodney Dawkins, as we:

• explore the role for self-care (especially in these challenging times),

• exchange ideas for how to create time and space for these practices in the daily hustle-and-bustle, and

• engage in two self-care exercises designed to relax and recharge the body and mind

This session is open to anyone who identifies as a person with lived experience of complex health and social needs and/or family care givers of people with complex health and social needs. We look forward to seeing you there!

Register Here!

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

Join us for this meaningful series and opportunity to connect! The purpose of the Building Bridges series is to create a sense of belonging within the PFAnetwork community. We are looking forward to having these candid conversations together!

Register here today!

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

Please join us for our quarterly Coffee Chat. Coffee Chats are a time to come together and catch up on community updates and hot topics. We hope to see you there! Register here!

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

Calling all Patient Family Partners (PFPs) looking to develop your Quality Improvement (QI) skills!   

Join us for a fun and interactive Quality Improvement (QI) Basics Skills Exchange designed just for YOU! Get ready to learn how to make a real difference in healthcare by partnering with others to improve care!   

When?   

• May 7 & 14

• 10am - 11:15am PT (1pm - 2:15pm ET)

Why Attend?

• Learn the basics of Quality Improvement (QI) and how it makes healthcare safer and better for patients and families like you.

• Build skills that will help you become a stronger partner in improving healthcare practices.

• Learn with others who share your passion for making healthcare better.

• Gain confidence in your role as a Patient Family Partner and help create positive changes!

What You'll Get:  

• Two engaging, informative, and fun virtual sessions on Zoom

• Practical knowledge and tips you can use right away

• Opportunities to ask questions, interact, and share ideas with other Patient Family Partners

• Tools to make an impact in your next healthcare partnership

Don't miss out – sign up today for this FREE, two-part Skills Exchange! Register here!

We can’t wait to see you there!     

Calling all Patient Family Partners (PFPs) looking to develop your Quality Improvement (QI) skills!   

Join us for a fun and interactive Quality Improvement (QI) Basics Skills Exchange designed just for YOU! Get ready to learn how to make a real difference in healthcare by partnering with others to improve care!   

When?   

• May 7 & 14

• 10am - 11:15am PT (1pm - 2:15pm ET)

Why Attend?

• Learn the basics of Quality Improvement (QI) and how it makes healthcare safer and better for patients and families like you.

• Build skills that will help you become a stronger partner in improving healthcare practices.

• Learn with others who share your passion for making healthcare better.

• Gain confidence in your role as a Patient Family Partner and help create positive changes!

What You'll Get:  

• Two engaging, informative, and fun virtual sessions on Zoom

• Practical knowledge and tips you can use right away

• Opportunities to ask questions, interact, and share ideas with other Patient Family Partners

• Tools to make an impact in your next healthcare partnership

Don't miss out – sign up today for this FREE, two-part Skills Exchange! Register here!

We can’t wait to see you there!