Please join us for our quarterly Coffee Chat. Coffee Chats are a time to come together and catch up on community updates and hot topics. We hope to see you there! Register here!

Join us in building a vibrant community that inspires change!

INSPIRE’s new Community Engagement Learning Network is a unique opportunity for community engagement (CE) professionals and people with lived experience (PWLE) to connect and learn together. Based on feedback from hundreds of people across the country about what they need to advance their work in CE, INSPIRE’s CE Learning Network is a community dedicated to sharing best practices, providing support to one another, and enhancing the field.

2025 scheduled sessions will all take place on the fourth Wednesday of each month, beginning at 3 pm ET.

REGISTER Here: Meeting Registration - Zoom

🌟 Join Us for a Webinar on Advancing Maternal Health: Exploring the Impact of Hypertension Guidelines in Pregnancy! 🌟

The American Heart Association will be hosting a timely discussion on the 2025 AHA/ACC Blood Pressure Guidelines and their impact on maternal health. Please check out the registration details below and join us if you can!

Register here.

Join us for a session of reflection and gratitude.

Register Here!

Join us for this month’s Better Caregiving for All webinar on Wednesday, November 19, at 1:00 PM PST.

 

The UCLA Alzheimer’s and Dementia Care (ADC) Program presents Better Caregiving for All, a monthly virtual series accessible via Zoom. It is delivered live and recorded for on-demand viewing. The material covered each month addresses the needs of populations that have not been the focus of traditional caregiver training and education in the past. Each session features a content expert and caregivers who share their knowledge and experience in caring for individuals with dementia.

 

November Topic: 

Caregivers of Persons Living with Dementia and Addictions

This webinar will cover addictions, including those related to alcohol and prescription medications.

 

Register Now: 

https://uclahs.az1.qualtrics.com/jfe/form/SV_5mx9MkNn1Lc4hw2 click here to sign up

(Or scan the QR code in the flyer)

 

Who Should Attend:

Everyone is welcome! We especially encourage caregivers of a person living with dementia and addictions, including those related to alcohol and prescription medications.

 

If you have any questions, please don't hesitate to contact dementiapm@mednet.ucla.edu.  

 

Warm regards,

The UCLA ADC Program

 

Website | X | LinkedIn

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

Join us for a live webinar

If you are a person with a disability in California or their circle of support, we want you to know about these upcoming changes to Medicaid. Building on the discussions from parts 1 and 2 of this series, we will give an overview of the latest state and federal policy changes and discuss issues specific to people with Intellectual and Developmental Disabilities (IDD).

This event is part 3 of a 3-part series on Medicaid changes.

When:
Monday, November 17, 2025
5:30 PM - 6:30 PM
Pacific Time

Register Here: https://www.disabilityrightsca.org/events/medicaid-changes-part-3-how-federal-medicaid-changes-affect-californians-with-i-dd#register

Join us for a live webinar

If you are a person with a disability in California or their circle of support, we want you to know about these upcoming changes to Medicaid. Experts from Disability Rights California and Cal Voices will delve deeper into how changes made by the federal government to Medicaid will impact California’s mental health services system.  

This event is part 2 of a 3-part series on Medicaid changes. Part 3 will delve into specific changes that will impact people with intellectual and developmental disabilities (IDD). 

When:
Thursday, October 30, 2025
11:00 AM - 12:00 PM
Pacific Time

Register Here: https://www.disabilityrightsca.org/events/medicaid-changes-part-2-how-federal-medicaid-changes-will-affect-californians-with#register

Please join us for our quarterly Coffee Chat. Coffee Chats are a time to come together and catch up on community updates and hot topics. We hope to see you there!

Join us in building a vibrant community that inspires change!

INSPIRE’s new Community Engagement Learning Network is a unique opportunity for community engagement (CE) professionals and people with lived experience (PWLE) to connect and learn together. Based on feedback from hundreds of people across the country about what they need to advance their work in CE, INSPIRE’s CE Learning Network is a community dedicated to sharing best practices, providing support to one another, and enhancing the field.

2025 scheduled sessions will all take place on the fourth Wednesday of each month, beginning at 3 pm ET.

REGISTER Here: Meeting Registration - Zoom

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

Join us for a live webinar.

If you are a person with a disability in California or their circle of support, we want you to know about these upcoming changes to Medicaid. Experts from Disability Rights California are going to break down who will be affected by these changes, when they are going to take place, and which law is causing each change.

This event is part 1 of a 3-part series on Medicaid changes. Parts 2 and Part 3 will dive into specific changes that will impact people with mental health disabilities and people with intellectual and developmental disabilities (IDD).

When:
Wednesday, October 15, 2025
5:30 PM - 6:45 PM
Pacific Time

Register Here: https://www.disabilityrightsca.org/events/medicaid-changes-part-1-state-and-federal-policy-updates-for-californians-with#register

Share Your Feedback on NQF’s Draft Report on AI in Healthcare Quality Measurement. 

As a reminder, the National Quality Forum (NQF) is seeking comments from the public on a draft of its upcoming report on the use of artificial intelligence (AI) methods in healthcare quality measurement through October 15, 2025. 

We Need Your Input

We invite you to submit comments on the draft report, which includes guidance and recommendations for developing, selecting, and implementing AI-enabled quality measures in accountability programs, including value-based payment, public reporting, performance-based provider network designs, and accreditation. Public comments submitted as part of this important initiative will inform the final report.

To learn more about the initiative, visit NQF’s website. To read the draft report and submit comments, go to surveymonkey.com/r/FD867LY. Please submit your comments by October 15, 2025, at 6:00 PM ET.

About This Initiative 

AI methods, such as natural language processing, machine learning, and large language models, hold enormous potential to enhance healthcare quality measurement. To realize the full potential of AI for quality measurement, we must establish strong governance and industry consensus. 

To drive consensus on the guidance and recommendations, NQF convened a national technical expert panel (TEP) comprised of stakeholders from across the healthcare ecosystem, including experts in the use of AI methods for healthcare quality measurement, clinical informatics, health information technology, and health equity, as well as representatives from payers, and health systems familiar with the use of AI methods for quality measurement. The TEP outlined key strategies to advance trustworthy AI-enabled measures and created a multi-step roadmap for implementing the strategies. This initiative on the use of AI in quality measures was funded by the Gordon and Betty Moore Foundation. 

If you have any questions, please contact the NQF AI in Quality Measurement team at AIinqualitymeasures@qualityforum.org.  

Share your feedback: https://www.surveymonkey.com/r/FD867LY

Thank you in advance for your participation and for your commitment to advancing healthcare quality.

Prescription drug pricing reform is at a pivotal point. The Center is hosting the Fall Policy Summit at the USC Capital Campus in Washington, DC. The Summit will bring together leaders in healthcare policy, patient advocacy, research, and industry to examine the promises of and pitfalls of international reference pricing (IRP) and to identify patient-informed, sustainable alternatives.

Grounded in our commitment to transparency, equity, and patient-centered value, this event offers an opportunity to shape policies that balance affordability, access, and innovation. Attendees will gain insights from global experts, hear directly from patients, and contribute to a policy roadmap for reform. [Tuesday, October 7, 2025 | 9:30 AM - 3:30 PM ET ]

|| LEARN MORE ||

REGISTER for Livestream.

CalABLE is a savings and investment program for people with disabilities. It helps individuals save money without losing important public benefits like SSI or Medi-Cal. This session is designed to help individuals with disabilities and their families understand how to save and invest money without losing essential public benefits. In this webinar, we will be discussing: • CalABLE basics and eligibility • Medi-Cal basics and eligibility • How CalABLE interacts with Medi-Cal • Medi-Cal estate recovery • FAQs The webinar will conclude with a Q&A session to give participants an opportunity to ask additional questions. If you are new to CalABLE and would like to explore the basics of the program, please visit our YouTube channel for replays of some of our earlier webinars that discuss the fundamentals of CalABLE. We will have ASL, Spanish, and live captioning available for this session.

REGISTER Here.

In this Town Hall, we will hear from 3 panelists representing communities in the healthcare ecosystem that we hear from less about the ways in which the conditions of industrial healthcare - the culture, policies, processes, and spaces - are impacting the ability of patients, caregivers, clinicians, and staff to trust and what we can do about it.

For full speaker bios and recommended media to view before the event go to > https://www.patientrevolution.org/library/trusttownhall Panelists: Carolyn Canfield, patient advocate, educator, and TPR Fellow Erin O'Malley, Executive Director of The Coalition for Trust in Health and Science Gary Schwitzer, a healthcare journalist, educator, and founder of HealthNewsReviews Substack

On September 30, 2025, 10:30a-12:00p ET on Zoom; we will be hosting a Town Hall that considers how decisions made far away from clinics and hospitals impact trust. Register now.

Event Details

Stress has real economic consequences, impacting individuals, families, and healthcare systems, yet it remains unmeasured, mainly in research and decision-making. This virtual, interactive workshop will explore the financial toll of stress that patients and caregivers face when navigating complex and chronic health conditions. Join us to learn how future studies can better capture these impacts and help inform more equitable healthcare solutions.

Key Discussion Topics:

• Personal and economic impacts of stress

• Current research findings and methods

• How to better identify, measure, and address these costs in research

Why Attend:

• Learn from experts and advocates

• Build connections across research, advocacy, and policy sectors

• Contribute to actionable solutions to economic challenges from stress

Join the Center for Innovation & Value Research for the fifth installment in our six-part workshop series within the Center's Patient-Centered Economic Impacts Project. The workshop is open to those interested in making healthcare research more patient-centered, particularly researchers interested in the economic impacts of disease, patients and caregivers eager to participate in or inform research, and funders of healthcare research.

REGISTER HERE.

Registration closes at 3PM ET Wednesday, September 24th.

Please contact Ushma Patel if you have any questions.

Join us in building a vibrant community that inspires change!

INSPIRE’s new Community Engagement Learning Network is a unique opportunity for community engagement (CE) professionals and people with lived experience (PWLE) to connect and learn together. Based on feedback from hundreds of people across the country about what they need to advance their work in CE, INSPIRE’s CE Learning Network is a community dedicated to sharing best practices, providing support to one another, and enhancing the field.

2025 scheduled sessions will all take place on the fourth Wednesday of each month, beginning at 3 pm ET.

REGISTER Here: Meeting Registration - Zoom

Come join us for a fun and engaging Co-Design Event around AI and technology!

💡 AI is changing healthcare — what about the patient and caregiver voice?

AI (artificial intelligence) is showing up everywhere in health care, from apps and portals to chatbots and lab results. We want the patient and caregiver voice at the forefront of this changing landscape.    

On September 17 from 10-11am PT, we’re hosting a special AI co-design event to create the change we want to see together. During this event, we will:   

• Build on what we learned from YOU – in interviews and our AI Survey.     

• Share our own experiences using AI and health technology.

• Talk about the challenges in the system that AI might solve.

• Imagine how AI could make care easier, safer, and more patient-centered.

💡 Your stories and ideas are powerful and needed. This is an opportunity to make sure AI in healthcare is built with us, not around us.  

We can’t wait to learn from each other and dream big together.

Register here: Meeting Registration - Zoom

PFPS US is honored to convene the Patient Safety Federal Leadership Briefing in recognition of World Patient Safety Day, September 17, 2025. This important virtual event will be held via Zoom from 9:00 to 11:30 AM Eastern Time, and registration is required. Please register HERE.

We are pleased to announce that Dr. Mehmet Oz, Administrator of the Centers for Medicare and Medicaid Services (CMS), will deliver a leadership message via video.

Joining PFPS US as Convening Partners for this briefing are the Institute for Healthcare Improvement (IHI), Johns Hopkins Medicine Armstrong Institute for Quality and Patient Safety, and the Leapfrog Group.

Other distinguished presenters include:

• Ruth Ann Dorrill, MPA, Assistant Inspector General, U.S. Department of Health and Human Services

• Michelle Schreiber, MD, Deputy Director, Center for Clinical Standards and Quality, and Director, Quality Measurement and Value-based Incentives Group, CMS

• Jade Perdue-Puli, MPA, Senior Advisor, Agency for Healthcare Research and Quality, Center for Quality Improvement

• Laura Adams, RN, Senior Advisor, National Academy of Medicine

Additionally, Patricia A. McGaffigan, RN, MS, CPPS, President of the Certification Board for Professionals in Patient Safety and Senior Advisor for Patient and Workforce Safety at IHI, will lead a session focused on advancing patient safety for children. The theme for World Patient Safety Day 2025 is Safe care for every newborn and every child.

We look forward to your participation in this vital briefing to advance patient safety nationwide.

Register Here: Meeting Registration - Zoom

LAC DHS Patient Family Partnership Hub meets every third Tuesday of the month at 10:00am PT.

APHA is looking for people to join our Disability justice advisory board! We are looking for a diverse group of people with many different lived experiences who will guide APHA activities on our Disability justice projects. We hope that many of these people will have lived experiences with Disability as either Disabled people or their loved ones or caregivers.

Timeline (October 2025 –June 2026)
-Complete the interest survey by September 15th at 11:59pm ET
-The first advisory board meeting will be in October
-The advisory board term will end in June of 2026

APHA is looking for people who can actively contribute their time and ideas to our activities, we think that this will take about 3-5 hours a month on average over the next 8 months.

Compensation: Advisory board members will be paid $150 per meeting they participate in for up to $600, members will be paid after each meeting. Receiving this payment will require a w9 for the purposes of taxes. APHA is not currently able to donate any payments.

Apply here: APHA Disability Justice as a Health Equity Imperative Advisory Board Survey

Join IPFCC for our next Informal Conversation, Better Together: Supporting Family Presence and Participation to Improve Safety and Quality: Part II. We know that family presence has a positive impact on care quality, experience, and safety. An expert team from the Ontario Caregiver Organization’s Essential Care Partner Support Hub, Lisa Raffoul, Implementation Lead, Alison Kilbourn, Manager, Melissa Ngo, Implementation Lead, Alia Pota, Implementation Lead, Janine Noorloos, Implementation Lead, Sarah Tariq, Implementation Lead, and Fardowsa Halane, Knowledge Exchange Lead are presenting. They will share their policies, strategies, best practices, and resources for supporting essential care partners to be present and participate in care and decision-making to ensure safety and quality.

Register here.